I’ve been to a number of WordCamps over the past year, and invariably, in the registration process I’m asked for my Twitter handle and the majority of the time that Twitter handle is printed on my name tag.
Why are we doing this?! It’s not TwitterCamp. It’s a W-O-R-D-C-A-M-P!! Why can’t we ask for and put our own domain names (running WordPress, natch…) in our registration and on our name tags?! Let’s get with the program people… Twitter is nice, but obviously WordPress on a domain name we own and control is far better.
I was ten years into a career as a user experience designer making new digital products when diabetes blew my family's life apart. The complexity and relentlessness of the burden of care that came with my youngest daughter's diagnosis at 1.5 years old, were overwhelming. I learned that people with diabetes are always 10 minutes of inattention away from a coma. Run your blood sugar too low and risk brain injury or death. Run too high and you do cumulative damage to your organs, nerves and eyes. And as a designer and hardware hacker I couldn't accept the limitations and poor User Experience I was seeing in all the tools we were given to deal with it.
Then I discovered Nightscout (a way to monitor my daughter's blood sugar in real time from anywhere in the world) and Loop (a DIY open sourced, artificial pancreas system that checks blood sugar and adjusts insulin dosing every five minutes 24/7) and the #WeAreNotWaiting community that produced them. For the first time I saw the kinds of tools I needed and true power of solutions that come from the people living with the problem. When I learned about the Tidepool's project to take Loop through FDA approval and bring it to anyone who wants to use it to give the same freedom and relief that we've experienced from it, I had to get involved. Now we are taking an open source software through regulatory approval and using real-life user data from the DIY community for our clinical trial in a process that is turning heads in the industry. We'll get into the many ways this story demonstrates ways that user driven design, open source models and a counterculturally collaborative approach with regulators are shifting the incentives and changing the landscape toward one more favorable to innovation.
Here’s the video I mentioned yesterday. Those deeply enmeshed in the IndieWeb movement and many of its subtleties will get a ringing sense of déjà vu as they watch it and realize there’s a lot of overlap with how (and why) Matt Lumpkin is working to help those with type 1 diabetes and the IndieWeb. Perhaps there are some lessons to be learned here?
Syndicated copies to:
There was an eerie and surprisingly large overlap of a lot of what Matt Lumpkin said in his talk this morning and the IndieWeb movement. If you just change the disease from Type 1 Diabetes to Social Media, there are a tremendous number of similarities between the two approaches of problems to be solved in terms of giving people agency, ownership of their data, the silo nature of the big corporations in the space, and the lack of solid inter-operability and standards.
I can’t wait for Chuck Chugumulung and the gang to get the video for this week up on YouTube so I can share it with colleagues.
Based on what I’ve heard, it might not be a completely terrible thing to class what the IndieWeb is working on fixing as a broad public health issue–but in its case a mental health one instead of a pancreas and diet related one.
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I’m planning on proposing an OER or other book related session at the upcoming IndieWebCamp New Haven next weekend. If you’re interested or want to propose other ideas for #DoOO or #EdTech, I hope you’ll join us either in-person or remotely.
Micro.blog can now import blog posts from Medium. You can request a .zip archive of your content from Medium.com, then go to Posts → Import on Micro.blog to upload the file.
Because Medium no longer supports custom domain names, we don’t think it’s a good long-term solution for blogging. If yo...
This is some awesome news, particularly for all the people fleeing Medium. Now they can own their own data on their own domain a whole lot easier. I wouldn’t be surprised to see more of the #DoOO crowd joining Micro.blog as an option too.
For example, the idea of “data ownership” is often championed as a solution. But what is the point of owning data that should not exist in the first place? All that does is further institutionalise and legitimate data capture. It’s like negotiating how many hours a day a seven-year-old should be allowed to work, rather than contesting the fundamental legitimacy of child labour. Data ownership also fails to reckon with the realities of behavioural surplus. Surveillance capitalists extract predictive value from the exclamation points in your post, not merely the content of what you write, or from how you walk and not merely where you walk. Users might get “ownership” of the data that they give to surveillance capitalists in the first place, but they will not get ownership of the surplus or the predictions gleaned from it – not without new legal concepts built on an understanding of these operations. ❧
David Shanske, have you gotten this far with your work on the Post Kinds plugin? I know you wanted to import your Pinboard account, but I’m not sure if you’ve got infrastructure for the import piece.
Any other ideas #IndieWeb (aka #ActiveWeb)?
There are so many reasons here for these folks to join the IndieWeb. A solid, popular feed reader would solve many of these problems.
“We are our own BuzzFeed,” said Declan Mortimer, a 16-year-old who ran the @ComedySlam account, with more than 11 million followers. Kaamil Lakhani and Jonathan Foley, who work together on @SocietyFeelings, said they were even in the process of building a dedicated website, as accounts such as @Daquan have already done.
Despite the Christmas setback, most meme account holders mentioned in this article said that they weren’t planning to abandon the platform anytime soon. But the incident served as an acute reminder of how quickly they can lose it all and be forced to start from scratch. “We’re playing on rented property,” said Goswami, “and that’s just so apparent now more than ever before.”
Foreign companies will no longer be allowed to sell products from their own affiliated companies in India
NEW DELHI—India is tightening restrictions on foreign e-commerce companies operating in the country, a new challenge to Amazon.com Inc. and Walmart Inc. as they bet billions on the nascent market.
Current rules forbid non-Indian online sellers from holding their own inventory and shipping it out to consumers, as is typically done in other countries. Instead, they have found a work-around by operating as online marketplaces and selling what are effectively their own products held by their affiliated local companies.
They will no longer be allowed to sell such goods, a division of India’s Commerce and Industry Ministry said in a statement Wednesday, an apparent attempt to close that loophole.
The new rules, which take effect Feb. 1, also bar foreign companies from entering into exclusive agreements with sellers. Amazon, for example, has in the past been the exclusive third-party online retailer to sell smartphones from the popular Chinese smartphone brand OnePlus.
Abneesh Roy, an analyst at Edelweiss Securities, noted that ahead of elections set for early next year, the government could be moving to appease owners of smaller shops that have been hit as customers buy more goods online.
“Shopkeepers have been unhappy,” he said. “In an election year, the government will definitely listen more to voters.” ❧
It’s nice to see foreign countries looking at what has happened to coutries like America with the rise of things like e-commerce, actually thinking about them and the longer term implications, and making rules to effect the potential outcomes.
Now the bigger follow up question is: is this a good thing? Perhaps there won’t be the community interruption we’ve seen in the US, but what do the overall effects look like decades hence? From a community perspective, from a competitive perspective?
With Alphabet Inc.’s Google, and Facebook Inc. and its WhatsApp messaging service used by hundreds of millions of Indians, India is examining methods China has used to protect domestic startups and take control of citizens’ data. ❧
Governments owning citizens’ data directly?? Why not have the government empower citizens to own their own data?
Personal websites and email can replace most of what people like about Facebook—namely the urge to post about their lives online.
There’s a lot of talk about leaving Facebook again in the last day or two, but very little on where to go other than a few people talking about Twitter or other toxic social media that will just end up starting the same cycle of pain and frustration again. This is at least a start, but it could lean more towards a full IndieWeb approach.
As a public critic of social media, I’m often asked if my concerns extend to YouTube. This is a tricky question.
As I’ve written, platforms such as Facebook and Instagram didn’t offer something fundamentally different than the world wide web that preceded them. Their main contribution was to make this style of online life more accessible and convenient.
As an interesting aside, I’ll note that just a few months ago that YouTube allowed people to do embeds with several options, but they’re recently removed the option to prevent their player from recommending additional videos once you’re done. Thus the embedding site is still co-opted to some extent by YouTube and their vexing algorithmic recommendations.
In a similar vein audio is also an issue, but at least an easier and much lower bandwidth one. I’ve been running some experiments lately on my own website by posting what I’m listening to on a regular basis as a “faux-cast” and embedding the original audio. I’ve also been doing it pointedly as a means of helping others discover good content, because in some sense I can say I love the most recent NPR podcast or click like on it somewhere, but I’m definitely sure that doesn’t have as much weight or value as my tacitly saying, “I’ve actually put my time and attention on the line and actually listened to this particular episode.” I think having and indicating skin-in-the-game can make a tremendous difference in these areas. In a similar vein, sites like Twitter don’t really have a good bookmarking feature, so readers don’t know if the sharing user actually read any of an article or if it was just the headline. Posting these things separately on my own site as either reads or bookmarks allows me to differentiate between the two specifically and semantically, both for others’ benefit as well as, and possibly most importantly, for my own (future self).