Despite steadily declining rates of cancer deaths over the past two decades, cancer remains responsible for 1 in every 6 deaths worldwide. It’s a scourge. So when, this week, an Israeli company called Accelerated Evolution Biotechnologies captured the news cycle with promises of a complete cure for cancer within the year, the story caught fire.
The company’s technology is called “MuTaTo” — that's multi-target toxin. And, to judge from the news media this week, it seems vetted, verified and veering us all toward a cancer-free future. Reports began in the Jerusalem Post, but quickly took off, making their way into various Murdoch-owned publications like FOX and the New York Post and landing in local news outlets around the country and the globe.
A couple days into the fanfare, the skeptics started coming out: for one thing, as oncologist David Gorski points out in his blog “Respectful Insolence,” the claims are based on experiments with mice: no human trials have yet started. For another, they haven’t been sufficiently peer reviewed. In fact, the company won’t share its research, claiming it can’t afford the expense. The too-good-to-be-true story appears to be just that, built on PR puffery. But who can resist a good cancer cure?
With Mutato in mind, for this week’s podcast extra, we revisit our Breaking News Consumer’s Handbook: Health News edition, with Gary Schwitzer, publisher & founder of HealthNewsReview.org.
I was ten years into a career as a user experience designer making new digital products when diabetes blew my family's life apart. The complexity and relentlessness of the burden of care that came with my youngest daughter's diagnosis at 1.5 years old, were overwhelming. I learned that people with diabetes are always 10 minutes of inattention away from a coma. Run your blood sugar too low and risk brain injury or death. Run too high and you do cumulative damage to your organs, nerves and eyes. And as a designer and hardware hacker I couldn't accept the limitations and poor User Experience I was seeing in all the tools we were given to deal with it.
Then I discovered Nightscout (a way to monitor my daughter's blood sugar in real time from anywhere in the world) and Loop (a DIY open sourced, artificial pancreas system that checks blood sugar and adjusts insulin dosing every five minutes 24/7) and the #WeAreNotWaiting community that produced them. For the first time I saw the kinds of tools I needed and true power of solutions that come from the people living with the problem. When I learned about the Tidepool's project to take Loop through FDA approval and bring it to anyone who wants to use it to give the same freedom and relief that we've experienced from it, I had to get involved. Now we are taking an open source software through regulatory approval and using real-life user data from the DIY community for our clinical trial in a process that is turning heads in the industry. We'll get into the many ways this story demonstrates ways that user driven design, open source models and a counterculturally collaborative approach with regulators are shifting the incentives and changing the landscape toward one more favorable to innovation.
Here’s the video I mentioned yesterday. Those deeply enmeshed in the IndieWeb movement and many of its subtleties will get a ringing sense of déjà vu as they watch it and realize there’s a lot of overlap with how (and why) Matt Lumpkin is working to help those with type 1 diabetes and the IndieWeb. Perhaps there are some lessons to be learned here?
Syndicated copies to:
There was an eerie and surprisingly large overlap of a lot of what Matt Lumpkin said in his talk this morning and the IndieWeb movement. If you just change the disease from Type 1 Diabetes to Social Media, there are a tremendous number of similarities between the two approaches of problems to be solved in terms of giving people agency, ownership of their data, the silo nature of the big corporations in the space, and the lack of solid inter-operability and standards.
I can’t wait for Chuck Chugumulung and the gang to get the video for this week up on YouTube so I can share it with colleagues.
Based on what I’ve heard, it might not be a completely terrible thing to class what the IndieWeb is working on fixing as a broad public health issue–but in its case a mental health one instead of a pancreas and diet related one.
VANCOUVER, Wash. — Amber Gorrow is afraid to leave her house with her infant son because she lives at the epicenter of Washington state’s worst measles outbreak in more than two decades. Born eight weeks ago, Leon is too young to get his first measles shot, putting him at risk forthe highly contagious respiratory virus, which can be fatal in small children.
The Enuma Elish and the Atrahasis, in circulation 3,800 years ago, were Mesopotamia's creation and flood epics, making them 1,000 years older than Genesis.
There are a few sections of these ancient texts which indicate that thousands (or more) were wiped out due to illness and disease that sound like a flu, a virus, or some other local pandemic. Gives pause to think about what the state of public health was at the time.
Enuma Elish and Atrahasis are indeed not well known, but I’ve actually seen quite a bit about them as the result of reading within the area of Big History.
I’ll have to do some digging but I’m curious if any researcher(s) have done synoptic analyses of these books and the Book of Genesis from the Old Testament. I’m sure there aren’t as many as there are of the synoptic gospels from the New Testament, but it might be interesting to take a look at them.
The obvious quote of the day:
The gods became distraught at the destruction they had unleashed. The midwife goddess, Mami, who helped raise the first generations of mankind, was particularly saddened, and “The gods joined her in weeping for the vanished country / She was overcome with heartache, but could find no beer”. Yes, it really says that.
As a side note, fermented beverages like beer were more popular throughout history than they are in modern America, because unlike now, prior generations of humans didn’t have the public health ideals or levels of clean drinking water that we do today. Thus beer and other alcoholic drinks were more par for the course because they were less likely to make you sick or kill you to drink them. Naturally the Mesopotamian gods must have been healthier for drinking them as a result too!