👓 Why Elizabeth Warren should be on the open web | Dave Winer

Read Why Elizabeth Warren should be on the open web by Dave Winer (Scripting News)
Why the open web is a better choice for a thoughtful and futuristic campaign like Warren's.

Many of my own thoughts reflected here.

👓 Unwalled.Garden: souped-up RSS for P2P social apps | Paul Frazee

Read Unwalled.Garden: souped-up RSS for P2P social apps by Paul Frazee (pfrazee.hashbase.io)
Beaker is an experimental peer-to-peer Web browser. In this post, I will describe a new files-oriented protocol we are developing called Unwalled.Garden which will drive the applications stack for Beaker sites.
Read Scripting News: Tuesday, June 4, 2019 by Dave Winer (Scripting News)
I've been working on the next River product. This time I'm using a MySQL database. Three tables -- feeds, items and subscriptions. The folder structure is exactly as in River5, except there is no data folder (the data is in the database). I am still a relative newbie in SQL databases, but I think this model works. I'm documenting as much as I can and of course I will release the Node.js source. I hope it serves as a basis for distributing RSS intelligence around the net. Last time around (Google Reader) we centralized. That was a mistake. If enough people run instances of this database we'll have a less interruptable base of functionality. I want to try out more new ideas as well. We've been really stuck for a long time.

👓 Chan Zuckerberg Initiative acquires and will free up science search engine Meta | TechCrunch

Read Chan Zuckerberg Initiative acquires and will free up science search engine Meta (TechCrunch)
Mark Zuckerberg and Priscilla Chan’s $45 billion philanthropy organization is making its first acquisition in order to make it easier for scientists to search, read and tie together more than 26 million science research papers. The Chan Zuckerberg Initiative is acquiring Meta, an AI-powered r…

Following up on the fate of Sciencescape.

👓 Game of Phones: Podcasts and podcast apps are now treating each other like wary rivals, protecting their turf | Nieman Lab

Read Game of Phones: Podcasts and podcast apps are now treating each other like wary rivals, protecting their turf (Nieman Lab)
Luminary gets pushback from Spotify and The New York Times: temporary glitch or the real start of the platform wars? Plus: Gimlet gets a union, a new podcast incubator, and Mueller Mueller everywhere.

👓 L’affaire Luminary continues with more podcasts dropping out and allegations of technical bad behavior | Nieman Lab

Read L’affaire Luminary continues with more podcasts dropping out and allegations of technical bad behavior (Nieman Lab)
The paid podcast app may well be doing nothing wrong in its hosting of podcasts from the open web — but nonetheless, what they've been best at thus far is generating pushback.

👓 Luminary says it’s not copying your podcast files and it’s no longer screwing with your stats — but it is killing all your show-notes links on purpose | Nieman Lab

Read Luminary says it’s not copying your podcast files and it’s no longer screwing with your stats — but it is killing all your show-notes links on purpose (Nieman Lab)
Those links to your donate page or Patreon signup are "security concerns."
Watched For Patients, by Patients: Pioneering a New Approach in Med-Tech Design by  Innovate Pasadena: Friday Coffee Meetup Innovate Pasadena: Friday Coffee Meetup from YouTube

I was ten years into a career as a user experience designer making new digital products when diabetes blew my family's life apart. The complexity and relentlessness of the burden of care that came with my youngest daughter's diagnosis at 1.5 years old, were overwhelming. I learned that people with diabetes are always 10 minutes of inattention away from a coma. Run your blood sugar too low and risk brain injury or death. Run too high and you do cumulative damage to your organs, nerves and eyes. And as a designer and hardware hacker I couldn't accept the limitations and poor User Experience I was seeing in all the tools we were given to deal with it.

Then I discovered Nightscout (a way to monitor my daughter's blood sugar in real time from anywhere in the world) and Loop (a DIY open sourced, artificial pancreas system that checks blood sugar and adjusts insulin dosing every five minutes 24/7) and the #WeAreNotWaiting community that produced them. For the first time I saw the kinds of tools I needed and true power of solutions that come from the people living with the problem. When I learned about the Tidepool's project to take Loop through FDA approval and bring it to anyone who wants to use it to give the same freedom and relief that we've experienced from it, I had to get involved. Now we are taking an open source software through regulatory approval and using real-life user data from the DIY community for our clinical trial in a process that is turning heads in the industry. We'll get into the many ways this story demonstrates ways that user driven design, open source models and a counterculturally collaborative approach with regulators are shifting the incentives and changing the landscape toward one more favorable to innovation.

Here’s the video I mentioned yesterday. Those deeply enmeshed in the IndieWeb movement and many of its subtleties will get a ringing sense of déjà vu as they watch it and realize there’s a lot of overlap with how (and why) Matt Lumpkin is working to help those with type 1 diabetes and the IndieWeb. Perhaps there are some lessons to be learned here?

There was an eerie and surprisingly large overlap of a lot of what Matt Lumpkin said in his talk this morning and the IndieWeb movement. If you just change the disease from Type 1 Diabetes to Social Media, there are a tremendous number of similarities between the two approaches of problems to be solved in terms of giving people agency, ownership of their data, the silo nature of the big corporations in the space, and the lack of solid inter-operability and standards.

I can’t wait for Chuck Chugumulung and the gang to get the video for this week up on YouTube so I can share it with colleagues.

Based on what I’ve heard, it might not be a completely terrible thing to class what the IndieWeb is working on fixing as a broad public health issue–but in its case a mental health one instead of a pancreas and diet related one.

Matt Lumpkin on stage pointing at a slide on the screen stating "Restoring one's own agency is the most critical task for people working to negotiate a healthy relationship with a chronic disease."
Matt Lumpkin during his talk “For Patients, by Patients: Pioneering a New Approach in Med-Tech Design“.
Matt Lumpkin on stage with a slide displaying the text "Do the people who use the things you make feel their power returned to them?"
Another IndieWeb sentiment in a presentation on UX/UI for improving health of people dealing with type 1 diabetes.

👓 CiteULike News | CiteULike

Read CiteULike is closing down by fergus (citeulike.org)

After nearly 15 years operating CiteULike, we’ve made the difficult decision to close the site. Unfortunately, the costs associated with providing it and the fact that none of us really has any time to put into the maintenance and development of the site mean that we have to call it a day.

We know there are still a number of you out there who use the site regularly and we’re sure you’ll be disappointed but hope you’ll understand.

You will be able to download your library until 30th March 2019 but after that it is likely that CiteULike will no longer be accessible. We will be refunding any Gold subscriptions pro rata that extend beyond that date.

We wish you all success in your research and happiness in your life.

The CiteULike team.

I’m glad I’ve been owning my bookmarks and references on my own site for years, knowing that sooner or later just this day would come.

CiteULike was an interesting service and had a useful bookmarklet and some social features, but had quite a janky looking UI. For those looking for alternates, I recommend not looking at other siloed services, but making an attempt to own your own bookmark posts on your own website. I’m happy to help if you have questions or need pointers.

🔖 Ethical alternatives to popular sites and apps | switching.social

Bookmarked Ethical alternatives to popular sites and apps (switching.social)

This looks interesting… Sadly a lot of their options seem to be very ActivityPub-centric, despite the fact that the site itself is run on WordPress (and they neglect to list it as an option as far as I can tell). Admittedly they do seem to be directed toward the non-technical user, but there are lots of options they’re also not listing here too. They’re also not mentioning the potential for abuse that some of these software present, particularly when they’re run by other people, or collectives of other people. While switching from Twitter to Mastodon may be a short term solution, your choice of particular instance could end you right back where you came from if you’re not careful or not running your own personal instance.

Missing from many of these lists are things like micro.blog and a plethora of IndieWeb-related projects.

With that said, it’s at least a start on overcoming some of the hurdles that exist for finding alternatives.

hat tip: Ryan Barrett

📑 Bullet Journal: One Book to Rule Them All | Jamie Todd Rubin

Annotated Bullet Journal: One Book to Rule Them All by Jamie Todd Rubin (Jamie Todd Rubin)
Isaacson pointed out that more than 7,000 pages from Da Vinci’s notebooks survived to today–a stretch of 500 years. He asked how many of our tweets and Facebook posts will survive even 50 years. Paper, it turns out, is a durable medium of information storage.  

Of course one also needs to think about reach and distribution as well. His notebooks have much more reach and distribution now than they ever did in his own lifetime. Where’s the balance? Blogging about it, syndicating to social media, and then printing paper copies in annual increments?

👓 The platform tide is turning | Nieman Journalism Lab

Read The platform tide is turning by Ben WerdmüllerBen Werdmüller (Nieman Lab)
“Instead of becoming more like technology companies or remaining beholden to platforms, publishers could help to build the internet they need.”

There are an impressive number of IndieWeb-related articles in this year’s list of Nieman Journalism Lab 2019 Predictions. Somehow I had missed the one written by our own Ben Werdmüller, or perhaps they continued publishing them after I’d seen the first batch?