Make your tweets ephemeral and your Facebook impenetrable.
I was ten years into a career as a user experience designer making new digital products when diabetes blew my family's life apart. The complexity and relentlessness of the burden of care that came with my youngest daughter's diagnosis at 1.5 years old, were overwhelming. I learned that people with diabetes are always 10 minutes of inattention away from a coma. Run your blood sugar too low and risk brain injury or death. Run too high and you do cumulative damage to your organs, nerves and eyes. And as a designer and hardware hacker I couldn't accept the limitations and poor User Experience I was seeing in all the tools we were given to deal with it.
Then I discovered Nightscout (a way to monitor my daughter's blood sugar in real time from anywhere in the world) and Loop (a DIY open sourced, artificial pancreas system that checks blood sugar and adjusts insulin dosing every five minutes 24/7) and the #WeAreNotWaiting community that produced them. For the first time I saw the kinds of tools I needed and true power of solutions that come from the people living with the problem. When I learned about the Tidepool's project to take Loop through FDA approval and bring it to anyone who wants to use it to give the same freedom and relief that we've experienced from it, I had to get involved. Now we are taking an open source software through regulatory approval and using real-life user data from the DIY community for our clinical trial in a process that is turning heads in the industry. We'll get into the many ways this story demonstrates ways that user driven design, open source models and a counterculturally collaborative approach with regulators are shifting the incentives and changing the landscape toward one more favorable to innovation.
I can’t wait for Chuck Chugumulung and the gang to get the video for this week up on YouTube so I can share it with colleagues.
Based on what I’ve heard, it might not be a completely terrible thing to class what the IndieWeb is working on fixing as a broad public health issue–but in its case a mental health one instead of a pancreas and diet related one.
At the start of each team meeting somebody shares a few things to get to know each other a little more. Here are some notes relating to my contribution …
An exercise I gave my students helps illustrate the risks to privacy in our everyday, offline lives.
On the morning of October 21, 2017, the budding New York choreographer Jinah Parker was sitting in bed, her husband lying alongside, when she opened her email and found a deeply unsettling, one-paragraph message about her debut dance production.
The show was called SHE, a Choreoplay, an off-off-Broadway interpretative dance in which four women vividly monologize rape and abuse.
Parker wrote and directed. Her newlywed husband, Kevin Powell, was the producer. In 1992, as a tenacious 26-year-old activist, he appeared on the inaugural season of MTV’s genre-defining reality show, The Real World. In the decades since, he’d become a prolific public speaker, author of 13 books, and a two-time congressional candidate.
Powell also has a history of violence. He assaulted women in college and once shoved a girlfriend into a bathroom door. Now he’s a sophist of male fragility, and an essential component of his activist repertoire is to engage in public reflection—usually with equal parts self-effacement and self-righteousness—upon this personal shame.
It would seem that this couple got just what they had coming to them, though it’s a bit disingenuous that they can go to crowd funding platforms to spread the blame out. I’m hoping that it was only all the people to whom they spread their invective to that ended helping to foot part of their bill.
Smartphone apps track a staggering amount of data about our whereabouts every day. That data has become a hot commodity.
No meme account is safe—not even @God.
“We are our own BuzzFeed,” said Declan Mortimer, a 16-year-old who ran the @ComedySlam account, with more than 11 million followers. Kaamil Lakhani and Jonathan Foley, who work together on @SocietyFeelings, said they were even in the process of building a dedicated website, as accounts such as @Daquan have already done.
Despite the Christmas setback, most meme account holders mentioned in this article said that they weren’t planning to abandon the platform anytime soon. But the incident served as an acute reminder of how quickly they can lose it all and be forced to start from scratch. “We’re playing on rented property,” said Goswami, “and that’s just so apparent now more than ever before.”
Micro.blog now has 3 distinct styles of usernames to make the platform more compatible with other services: Micro.blog usernames, e.g. @you. These are simple usernames for @-mentioning someone else in the Micro.blog community. Mastodon usernames, e.g. @firstname.lastname@example.org. When you search Micro.blog ...
It also sounds very much like Kevin Marks’ Distributed Verification scheme using the rel=”me” attribute on web pages for which he built a chrome browser extension to actually implement it. Kevin also recently reported that Mastodon now actually supports this verification scheme in one of their most recent updates which should be used by instances that are regularly updating. The benefit is that this scheme already exists, is relatively well supported, there are parsers available for it, and it’s actually working on the open web. It’s also truly distributed in that it doesn’t rely on any central provisioning authorities that require ongoing maintenance or which could provide a monopoly on such a service.
Some more details about a proposed solution for MoodleNet that could solve some problems around decentralised identity.
(Mind you, since you can self-host Mastodon, you should really verify links yourself instead of relying on a cosmetic feature as I could have just faked that via a bit of CSS.) ;)
The particular design question I’m personally looking at is roughly:
How can we reshape the web and social media in a way that allows individuals and organizations a platform for their own free speech and communication without accelerating or amplifying the voices of the abhorrent fringes of people espousing broadly anti-social values like virulent discrimination, racism, fascism, etc.?
In some sense, the advertising driven social media sites like Facebook, Twitter, et al. have given the masses the equivalent of not simply a louder voice within their communities, but potential megaphones to audiences previously far, far beyond their reach. When monetized against the tremendous value of billions of clicks, there is almost no reason for these corporate giants to filter or moderate socially abhorrent content. Their unfiltered and unregulated algorithms compound the issue from a societal perspective. I look at it in some sense as the equivalent of the advent of machine guns and ultimately nuclear weapons in 20th century warfare and their extreme effects on modern society.
The flip side of the coin is also potentially to allow users the ability to better control and/or filter out what they’re presented on platforms and thus consuming, so solutions can relate to both the output as well as the input stages.
Comments and additions to the page (or even here below) particularly with respect to positive framing and potential solutions on how to best approach this design hurdle for human communication are more than welcome.
Deplatforming or no platform is a form of banning in which a person or organization is denied the use of a platform (physical or increasingly virtual) on which to speak.
In addition to the banning of those with socially unacceptable viewpoints, there has been a long history of marginalized voices (particularly trans, LGBTQ, sex workers, etc.) being deplatformed in systematic ways.
The banning can be from any of a variety of spaces ranging from physical meeting spaces or lectures, journalistic coverage in newspapers or television to domain name registration, web hosting, and even from specific social media platforms like Facebookor Twitter. Some have used these terms as narrowly as in relation to having their Twitter “verified” status removed.
“We need to puncture this myth that [deplatforming]’s only affecting far-right people. Trans rights activists, Black Lives Matterorganizers, LGBTQI people have been demonetized or deranked. The reason we’re talking about far-right people is that they have coverage on Fox News and representatives in Congress holding hearings. They already have political power.” — Deplatforming Works: Alex Jones says getting banned by YouTube and Facebook will only make him stronger. The research says that’s not true. in Motherboard 2018-08-10
Glenn Beck parted ways with Fox News in what some consider to have been a network deplatforming. He ultimately moved to his own platform consisting of his own website.
Milo Yiannopoulos, the former Breitbart personality, was permanently banned from Twitter in 2016 for inciting targeted harassment campaigns against actress Leslie Jones. He resigned from Breitbart over comments he made about pedophilia on a podcast. These also resulted in the termination of a book deal with Simon & Schuster as well as the cancellation of multiple speaking engagements at Universities.
The Daily Stormer
Neo-Nazi site The Daily Stormer was deplatformed by Cloudflare in the wake of 2017’s “Unite the Right” rally in Charlottesville. Following criticism, Matthew Prince, Cloudflare CEO, announced that he was ending the Daily Stormer’s relationship with Cloudflare, which provides services for protecting sites against distributed denial-of service (DDoS) attacks and maintaining their stability.
Alex Jones and his Infowars were deplatformed by Apple, Spotify, YouTube, and Facebook in late summer 2018 for his Network’s false claims about the Newtown shooting.
- Deplatforming Works in Motherboard
Gab.ai was deplatformed from PayPal, Stripe, Medium †, Apple, and Google as a result of their providing a platform for alt-right and racist groups as well as the shooter in the Tree of Life Synagogue shooting in October 2018
Gab.com is under attack. We have been systematically no-platformed by App Stores, multiple hosting providers, and several payment processors. We have been smeared by the mainstream media for defending free expression and individual liberty for all people and for working with law enforcement to ensure that justice is served for the horrible atrocity committed in Pittsburgh. Gab will continue to fight for the fundamental human right to speak freely. As we transition to a new hosting provider Gab will be inaccessible for a period of time. We are working around the clock to get Gab.com back online. Thank you and remember to speak freely.
—from the Gab.ai homepage on 2018-10-29
- Gab, the Social Media Site for the Alt-Right, Gets Deplatformed
- Microsoft threatened to stop hosting the alt-right’s favorite social network in Quartz 2018-08-10
- Face the Racist Nation from On The Media | WNYC Studios on 2018-08-31 includes a segment about deplatforming racist groups from news coverage in the early 1900’s.
- ‘By Whatever Means Necessary’: The Origins of the ‘No Platform Policy’ on Hatful of History on 2015-11-03
- Deplatforming Works: Alex Jones says getting banned by YouTube and Facebook will only make him stronger. The research says that’s not true. in Motherboard 2018-08-10
- Study finds Reddit’s controversial ban of its most toxic subreddits actually worked TechCrunch on 2017-09-11
- The case for quarantining extremist ideas by Joan Donovan and Danah Boyd in The Guardian on 2018-06/01
- You Can’t Stay Here: The Efficacy of Reddit’s 2015 Ban Examined Through Hate Speech Proc. ACM Hum.-Comput. Interact., Vol. 1, No. 2, Article 31. Publication date: November 2017.